Originally published July 24, 2020
Doctor after doctor recommended different treatment options for Marlene Portnoy’s husband, Steve, after he was diagnosed with a desmoid tumor. Desmoid tumors are rare, and each doctor admitted uncertainty about their plans.
“Let me tell you, that’s a really scary thing when doctors can’t agree,” said Marlene.
Steve has since recovered, but Marlene has only begun to take on desmoid tumors.
Frustrated by her family’s daunting experiences finding care, she began helping other desmoid patients. Through her advocacy work, Marlene met Mrinal Gounder, MD, a Conquer Cancer researcher and oncologist who treats sarcoma patients.